Looking After The Future

My sympathies- I have chronic migraines and have been working with my neurologist trying out new treatments. I have Botox every 3 months and have been using the cefaly both as a preventative and during migraines. I also use a cold pack on the back of my neck. Classical music on headphones helps (even with the kids around). I have dark glasses that I wear in stores when I feel like a migraine is close. DD tells me I look like I have a hangover . We’re now trying daily preventatives. I tried flunarazine which caused me to gain weight and sleep most of the day/night. Now on nortriptlyline, which leaves me with milder migraines. Could increase the dose but it makes me mentally fuzzy. Could you increase your amitriptiline (obv ask Dr)?
I have ibuprophen, tramadol & ondansetron to use during a migraine. Can’t use triptans. Trying not to use too much ibuprophen due to rebound headache. Sometimes can get by with just nausea relief. I hate meds.
I do meditation .
I go to Migraine.com for support when I’m feeling exhausted good article
When my kids were little and I had a migraine, I’d go to a safe place (fenced back yard, living room) where they could play without needing too much supervision. They understood when I told them I wasn’t well. Now they look after me.
Be patient and kind to yourself. One of the treatments will work. Try not to focus on what you can’t do (fun filled summer) as that’s out of your control – reward yourself for what you can do, and try to take some time for yourself if your partner can give you a break. Remove the word “should” from your vocabulary.
Sorry if this doesn’t make a whole lot of sense. I’m drug fuzzy and don’t even want to think about the brain scarring I may have (thank you, pp, for putting that into my thoughts for today!)

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